Resources- Specific Diagnosis Card Catalog- Progeria
Also known as Hutchinson-Gilford Progeria Syndrome
Who to Contact
Sunshine Foundation Dream Village
5400 C.R. 547 North
P.O. Box 255
Loughman, FL 33858
(800) 457-1776
E-mail: florida@sunshinefoundation.org
Web: www.sunshinefoundation.org
Since 1976 The Sunshine FoundationŽ has fulfilled over 23,500 dreams and wishes for chronically ill, terminally ill, and abused children. Whether it's a visit with a celebrity hero, a family outing, a trip to Disney WorldŽ or a special gift Sunshine has never said "no" to a deserving child.
The majority of wishes Sunshine fulfils are to visit Central Florida attractions. Therefore in February of 1990 Sunshine opened the doors of its' Dream Village and since then approximately 1000 special children and their families have enjoyed the facilities at this special place for special children. In a fairytale like setting with a gingerbread facade, the Sunshine Foundation Dream Village is a place where children and their families stay while they briefly forget the pain and suffering that is part of their everyday lives. In addition, each year Sunshine sponsors a worldwide reunion of children suffering from Progeria. The Progeria Reunion gives those children suffering from this rare disease the opportunity to meet and get to know others with this rare genetic disease.
International Progeria Registry
W.T. Brown, MD, Ph.D.
NYS Institute for Basic Research
1050 Forest Hill Road
Staten Island, NY 10314
(718) 494-5333
Where to Go Chat with Others
Learn More About It
Frequently Asked Questions About Progeria
Links
Hutchinson-Gilford Progeria Syndrome (HGPS) Resource Page
The Progeria Research Foundation Homepage
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