Resources- Specific Diagnosis Card Catalog- Potter's Syndrome
Also see: Bereavement Support
Who to Contact
National Potter's Syndrome Support Group (NPSSG)
225 Louisiana Street
Dyess AFB, TX 79607
(915) 692-0831
E-mail: Wright01@Camalott.com
Web: http://potterssyndromesupport.homestead.com
The National Potter's Syndrome Support Group's mission is to provide families who have a member with Potter's Syndrome information and a support network. They provide services to parents and families of children/babies who now have or have died from Potter's Syndrome. They are in the process of publishing a tri-monthly newsletter that will be free. They have a new parent packet that includes a letter and information on Potter's syndrome.
NPSSG collects information on physicians and researchers who treat/study the condition and share this information with their members. They will provide referrals to other organizations that are related to or have information about Potter's Syndrome.
Where to go to Chat with Others?
Potter's Syndrome Group Forum
Note: You will be asked to register (free registration) if you are not already a member of Delphi forums
Learn More About It
Potter Syndrome
From the Medical College of Wisconsin Physicians and Clinics in Milwaukee
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