Resources- Specific Diagnosis Card Catalog- Retinitis Pigmentosa
See also Usher Syndrome
Who to Contact
Retinitis Pigmentosa International (HPI)
P.O. Box 900
Woodland Hills, California, USA, 91365
818-992-0500
818-992-3265 (fax)
E-mail: info@rpinternational.org
Web: www.rpinternational.org
Retinitis Pigmentosa International supports research to end blindness from degenerative eye disease, promote a public awareness and education campaign, and provide human services programs to better the quality of life for those with vision loss.
Retinitis Pigmentosa International publishes a quarterly newsletter The Night Lighter, and offers many pamplets on current treatments, and research in progress. They have available "How to Survive Losing Vision" in print and audio versions. Call for charges for these and any other information.
Retinitis Pigmentosa International has local support groups and will provide materials and assistance to individuals wishing to start a group in their area. They also provide services for the visually impaired of all kinds, and in all states.
Where to go to Chat with Others?
Retinitis Pigmentosa
A place for people with Retinal Degnerative diseases. Retinitis Pigmentosa, Ushers Syndrome, Macular Degeneration and others.
RP Friends
The RP-Friends Mailing List is a discussion group where people whose lives have been touched by Retinitis Pigmentosa, an often blinding eye disorder, gather for friendship and support. RP-Friends was formed to accommodate friendly and frivolous messages.
RSD Support
A safe place to discuss RSD and life with RSD.
Learn More About It
A Guide to Retinitis Pigmentosa
Retinitis Pigmentosa
From eMedicine
Retinitis Pigmentosa Frequently Asked Questions
Links
John Wenberg's Retinitis Pigmentosa Homepage
The Texas Association of Retinitis Pigmentosa, Inc. (TARP)
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