Resources- Specific Diagnosis Card Catalog- Rett Syndrome
Who to Contact
International Rett Syndrome Association
9121 Piscataway Rd Suite 2B
Clinton MD 20735
1-800-818-7388
301-856-3334
301-856-3336 (Fax)
E-mail: irsa@rettsyndrome.org
Web: www.rettsyndrome.org
A comprehensive worldwide organization dedicated to Rett syndrome. The International Rett Syndrome Association disseminates timely, accurate, objective information on Rett syndrome throughout the world to people who need information and resources and to researchers who can make a difference and provides books and materials, annual conferences, regional seminars, quarterly newsletters, a website with more than 2 billion hits last year, RettNet, a toll free help line, a listening ear and a caring heart so you know you are not alone.
Where to go to Chat with Others?
RETT Net
An ongoing discussion for Doctors, Researchers and parents of Rett Syndrome girls.
Club Rett
Our Mailing List is for ADULTS who have a Rett Syndrome Angel in their life. It is a place to share ANYTHING you want to talk about.
Rett Syndrome Parents
A place for Rett Syndrome Parents to talk about- discuss and share thoughts- idea's and questions about Rett Syndrome.
Rettangels
Atypical Angelman Syndrome and Atypical Rett Syndrome/dual diagnosis
Rett Syndrome Forum
The Rett Syndrome Forum is a moderated e-mail discussion group connecting parents and others interested in Rett syndrome. It is a forum for questions, support, advice, research, discussion and announcements.
Personal Accounts
Kim Johnson - The Rett Syndrome Experience
Learn More About It
Rett Syndrome from The Center for the Study of Autism (CSA).
About Rett Syndrome
From the Rett Syndrome Research Foundation
Links
International Rett Syndrome Association Home Page
Our Rett Syndrome Page - Debbie Schilling, mother of a child with Rett Syndrome
Rett Syndrome Research Foundation
Rett Syndrome Association of Massachusetts
Site designed and maintained by proFilesInteractive