Resources- Specific Diagnosis Card Catalog- Reye's Syndrome
Who to Contact
National Reye's Syndrome Foundation
426 North Lewis Box 829
Bryan, Ohio, USA, 43506
419-636-2679 (phone)
800-233-7393 (toll-free)
419-636-3366 (fax)
E-mail: nrsf@reyessyndrome.org
Web: www.reyessyndrome.org
National Reye's Syndrome Foundation (NRSF) provides awareness to the public and medical community; raises funds for research; provide emotional support and guidance to people who have Reye's and their families. NRSF has local support groups with a directory available. The foundation will also provide materials or assistance to anyone wishing to start a local group.
NRSF publishes a bi-annual newsletter, In The News, which is free to members. They also have pamphlets with various titles all on Reye's Syndrome, and a packet for new parents. There are videos available loan-free with a returnable deposit.
NRSF collects information on physicians and researchers and makes the information accessible to members. There is a national conference; call for further information. They also furnish information to other providers.
Where to go to Chat with Others?
We are unaware of any discussion forums specifically for this diagnosis. If you know of one, please let us know.
Learn More About It
Reye's Syndrome Information Page
From the National Institute of Neurological Disorders and Stroke
The Arc's Q&A on Reye's Syndrome
Reye's Syndrome
From Medline Plus Medical Encyclopedia
Links
International Rett Syndrome Association Home Page
Our Rett Syndrome Page - Debbie Schilling, mother of a child with Rett Syndrome
Rett Syndrome Research Foundation
Rett Syndrome Association of Massachusetts
Site designed and maintained by proFilesInteractive