Resources- Specific Diagnosis Card Catalog- Sickle Cell Disease
Who to Contact
Sickle Cell Disease Association of America
16 S. Calvert Street, Suite 600
Baltimore, Maryland 21202
410.528.1555 Office
410.528.1495 Fax
800.421.8453 General Public
E-Mail: scdaa@sicklecelldisease.org
Web: http://sicklecelldisease.org/
The Sickle Cell Disease Association of America, Inc. (SCDAA), formerly know as the National Association for Sickle Cell Disease (NASCD) was founded in 1971 to provide an effective coordinated community-based approach to developing and implementing strategies to resolve issues surrounding sickle cell disease. Through three decades, SCDAA and its Member Organizations have demonstrated how community-based organizations can work with local and state government agencies in furtherance of national health care objectives. Sickle Cell Disease Association of America, Inc. is helping to promote finding a universal cure for sickle cell disease, and helping to improve the quality of life for individuals and families where sickle cell disease related conditions exist.
The American Sickle Cell Anemia Association
10300 Carnegie Avenue
Cleveland Clinic / East Office Building (EEb18)
Cleveland, Ohio 44106
Tel: 216-229-8600
Web: www.ascaa.org
The organization currently provides a wide range of services to those individuals and families with either sickle cell anemia, sickle cell trait, or variants of the disease. Key services include: ongoing follow-up diagnostic testing, counseling, and tracking services for parents with infants who screen positive by the State Laboratory; Family Counseling and Support Services; coordination of medical, social services, education and support for the program's clientele; teacher education and screening services delivery at upwards of 75 local health fairs. In addition, ASCAA makes outreach to the region's African American, Hispanic, Mediterranean, and Arab communities for family education and the identification of the incidence of sickle cell disease.
Where to Go Chat with Others
Sickle Cell Defiers - Mailing list and Chat rooms
American Sickle Cell Anemia Association Chat Room
The Sickle Cell Forum
Discussion forum for those living with or who know someone with Sickle Cell Anemia
Learn More About It
Frequently Asked Questions About Sickle Cell Disease
Sickle Cell Disease Information
What Is Sickle Cell Disease?
Dolan DNA Learning Center
Sickle Cell Fact Sheet from NIH
Links
American Sickle Cell Anemia Association
Sickle Cell Disease Association of America
The Sickle Cell Foundation of Georgia, Inc.
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