Resources- Specific Diagnosis Card Catalog- Spinal Cord Injuries

Who to Contact

Christopher Reeve Paralysis Foundation
500 Morris Avenue
Springfield, NJ 07081
(800) 225-0292
Web: www.apacure.com

The Christopher Reeve Paralysis Foundation (CRPF) is committed to funding research that develops treatments and cures for paralysis caused by spinal cord injury and other central nervous system disorders. The Foundation also vigorously works to improve the quality of life for people living with disabilities through its grants program, paralysis resource center and advocacy efforts.

Since 1982, CRPF has awarded $42.5 million in research grants to the world's best neuroscientists. CRPF grants are catalytic. We support new initiatives, take smart risks, and make sure our research dollars are spent to do the most good.

In addition, through our Quality of Life Grants program, CRPF has granted close to $3.5 million since 1999 to nonprofit organizations that help improve the daily lives of people living with paralysis, particularly spinal cord injuries.

National Spinal Cord Injury Association (NSCIA)
6701 Democracy Blvd, Suite 300-9
Bethesda, MD 20817
800-962-9629 (Toll-free Helpline)
301-214-4006 (Voicemail)
301-881-9817 (Fax)
E-mail: info@spinalcord.org
Web: www.spinalcord.org

At NSCIA, we educate and empower survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. We fulfill this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education. Our education programs are developed to address information and issues important to our constituency, policy makers, the general public, and the media, and including injury prevention, improvements in medical, rehabilitative and supportive services, research and public policy formulation.

Paralyzed Veterans of America (PVA)
801 Eighteenth Street NW
Washington, DC 20006
1-800-424-8200 (V)
E-mail: info@pva.org
Web: www.pva.org

The Paralyzed Veterans of America, a congressionally chartered veterans service organization founded in 1946, has developed a unique expertise on a wide variety of issues involving the special needs of our members-veterans of the armed forces who have experienced spinal cord injury or dysfunction.

PVA will use that expertise to be the leading advocate for: quality health care for our members; research and education addressing spinal cord injury and dysfunction; benefits available as a result of our members' military service; and civil rights and opportunities which maximize the independence of our members.

To enable PVA to continue to honor this commitment, we must recruit and retain members who have the experience, energy, dedication, and passion necessary to manage the organization and ensure adequate resources to sustain the programs essential for PVA to achieve its mission.

Spinal Cord Injury Network International (SCINI)
3911 Princeton Drive
Santa Rosa, CA 95405-7013
1-800-548-2673
707-577-8796
707-577-0605 (fax)
E-mail: spinal@sonic.net
Web: www.spinalcordinjury.org

SCINI is a non-profit organization dedicated to facilitating access to quality health care by providing information and referral services to spinal-cord-injured individuals and their families.

We have an 1-800 toll-free phone number; an Information Center containing books, journals and clippings files; information sheets on a variety of topics relating to SCI; and a Video Lending Library. Our Website offers news items, with links, on research, legislation and other topics; links to SCI resources on the WWW; a glossary; and a calendar.

Spinal Cord Society (SCS)
19051 County Highway 1
Fergus Falls, Minnesota 56537-7609
218-739-5252 (phone 1)
218-739-5261 (phone 2)
218-739-5262 (fax)
Web: http://members.aol.com/scsweb/

SCS is a large grass roots organization linked by over 200 chapters, a monthly Newsletter, and thousands of members throughout North America and 24 other countries. Its goal is cure of spinal cord injury paralysis. It is an organization of the spinal cord injured, their families and friends, and dedicated scientists and physicians who are aiming at the ultimate goal of cure through improved treatment and research.

Where to go to Chat with Others?

alt.med.cure-paralysis

Spinal Cord Injury and Families
A group that will relate to people who have lived with a Spinal Cord Patient and need advice or want to talk about things related to it.

Spinal Cord Injury
This list is for people who have suffered a spinal cord injury as the result of an injury or illness. A good opportunity to meet people who know what it's like to walk in our shoes . Coping with our disabilities and the complications that go along post spinal cord injury need to be talked about so we don't feel so alone.

Women With SCI
Women with spinal cord injury make up such a small percentage of the SCI commutity that much of the information and help is aimed at men. This is a club for women with SCI so that we may offer helpful hints, moral support, and funny stories that we all need from time to time.

SCIPIN-L
Provides consumers and other interested individuals with a fast, easy way to share problems and solutions. The Disability and Health Program will try to provide a helpful and supportive environment for discussion of issues related to health and wellness for individuals with spinal cord injury, including preventing secondary conditions, access to services and consumer and professional education needs.

Learn More About It

MEDLINEplus: Spinal Cord Injuries
List of links related to SCI research

Spinal Cord Injury Facts
National Spinal Cord Injury Statistical Center (NSCISC)

Traumatic Brain & Spinal Cord Injury Projects' Homepage
At Santa Clara Valley Medical Center

Living With Spinal Cord Injury
American Occupational Therapy Association

Spinal Cord Injury Update
This newsletter covers topics related to spinal cord injury (SCI) for both health care providers and consumers

Spinal Cord Injury Factsheets
From National Spinal Cord Injury Association (NSCIA)

Understanding Spinal Cord Injury
From Cure Paralysis Now

Links

The National Spinal Cord Injury Association
Educates and empowers survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment.

Cure Paralysis Now Web Site
Concerned about a cure of paralysis

The Miami Project to Cure Paralysis
The world's largest research center dedicated to finding more effective treatments and, ultimately, a cure for paralysis that results from spinal cord injury.

Christopher Reeve Paralysis Foundation
Funds research that develops treatments and cures for paralysis caused by spinal cord injury and other central nervous system disorders.

Foundation for Spinal Cord Injury Prevention, Care & Cure
A non-profit educational group dedicated to the prevention, care and cure of spinal cord injuries through public awareness, education and funding research.

The Spinal Cord Research Centre of the University of Manitoba
For people interested in spinal cord research underway at the Spinal Cord Research Centre in Manitoba

Spinal Cord Injury Resources
An extensive list of links from Jim Lubin

Eastern Paralyzed Veterans Association
Focuses on empowering people with spinal cord injury or disease

The Spinal Cord Society
A grass roots organization linked by over 200 chapters, a monthly Newsletter, and thousands of members throughout North America and 24 other countries.

Paralyzed Veterans of America
Focuses on a wide variety of issues involving the special needs of veterans of the armed forces who have experienced spinal cord injury or dysfunction.

Rick Hansen Institute
Created to raise awareness and funds to improve quality of life for people with spinal cord injury, and to support research, ultimately leading to a cure.

Model Spinal Cord Injury Systems (MSCIS) Doorway
The Model Spinal Cord Injury Systems (MSCIS) Doorway provides an entrance to the various spinal cord research systems funded by the National Institute on Disability and Rehabilitation Research (NIDRR).

Spinal Cord Injury Information Network
The UAB Model SCI System conducts research to improve upon and maintain a cost-effective comprehensive service delivery system from the moment of injury across the lifespan for person who sustain a spinal cord injury. Emphasis is on collaborative clinical research to solve the medical management and acute rehabilitation problems of individuals with SCI.

SCI Info Pages - Spinal Cord Injury Information
A free resource for those with a spinal cord injury, or other disabling injury or disease of the spine. Provides health information and resources related to spinal cord injuries and contains related links with site descriptions.