Resources- Specific Diagnosis Card Catalog- Scleroderma
Who to Contact
Scleroderma Research Foundation (SRF)
2320 Bath Street, Suite 315
Santa Barbara, CA 93105
800-441-CURE (toll-free)
805-563-9133 (phone)
Web: www.srfcure.org
The Scleroderma Research Foundation exists as the only organization in the nation dedicated exclusively to finding a cure for this terrible disease. Through nationwide public awareness efforts and an innovative research approach that brings together the best of business, government, science and medicine, the Foundation has raised millions of dollars for critical disease research.
The mission of the Scleroderma Research Foundation is to find a cure for scleroderma, a life-threatening and degenerative illness, by funding and facilitating the most promising, highest quality research and by placing the disease and the need for a cure in the public eye.
Scleroderma Foundation
12 Kent Way, Suite 101
Byfield, MA 01922
978-463-5843 (phone)
978-463-5809 (fax)
800-722-4673 (toll-free)
E-mail: sfinfo@scleroderma.org
Web: www.scleroderma.org
The Scleroderma Foundation is the national organization for people with scleroderma and their families and friends. It was formed January 1, 1998, by a merger between the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Federation.
We have a three-fold mission: Support: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information; Education: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns; and Research: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases. While we budget over $1 million per year for new research into the cause and cure of scleroderma, we also consider the other two parts of our mission very important.
Where to Go Chat with Others
Scleroderma General Discussion Board
Scleroderma Support
People with scleroderma sharing info and support
Autoimmune Teens
This is a group for teens suffering from different autoimmune disorders/disease. It is open to anyone aged 10 - 25. Some of the autoimmune disorders/disease are addison's disease, chronic fatigue syndrome, crohn's and colitis, diabetes, fibromayalgia, lupus, meniere's disease, multiple sclerosis, myasthenia gravis, saroidosis, scleroderma, vitiligo, Eosinophilic Gastroenteritis, Eosinophilic Esophagitis, Eosinophilic Colitis.
SD World
SD World is a list dedicated to providing a place where those who suffer from Scleroderma and other autoimmune problems may gather in a warm, friendly forum for an upbeat, open and free exchange of thoughts, ideas and information.
Scleroderma Autoimmune Digest
Email Support Group was originally founded in 1996 at the request of members online, to support their need to communicate with others who could relate to what they were experiencing. It was moved to sclerodigest at yahoo groups June 2003. It has grown into a strong family of support for people with scleroderma, lupus, fibromyalgia and other autoimmune disorders. We hope you'll join us and give us the opportunity to get to know you better.
Learn More About It
Familial Progressive Scleroderma
Scleroderma
Medline Plus
Links
National Registry for Childhood Onset Scleroderma
Scleroderma Research Foundation
International Scleroderma Network
Raynauds and Scleroderma Association
United Kingdom
Schizophrenia Society of Canada
Canada
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