Resources- Specific Diagnosis Card Catalog- Shy Drager Syndrome
Synonym: Multiple System Atrophy
Who to Contact
Shy-Drager Syndrome/Multiple System Atrophy Support Group (SDS/MSA)
2004 Howard Lane
Austin, TX. 78728
Toll Free: 1-866-SDS-4999 (Answering Machine)
Phone: 512-251-2247 (Weekdays) 512-856-2427 (Nights and Weekends)
Fax: 512-251-3315
E-mail: shydrager@yahoogroups.com
Web: www.shy-drager.com/
Newsletter Subscription Requests: shydrager-subscribe@yahoogroups.com The mission of the Shy-Drager Syndrome/Multiple System Atrophy Support Group (SDS/MSA) is to gather information from each group of people involved (Patients, Caregivers, Family Members, and Physicians) and disseminate that information to all. The SDS/MSA Support Group is an information center and a "Helping Hand" for affected people. Through various programs, including the continuation of the national patient/caregiver support group meeting, support of local groups, the toll free help line, quarterly newsletters and web site, the SDS/MSA's Support Group can reach many more people in need. The support group also works closely with physicians who are treating the patients as well as those who are involved in the essential research to discover a cause, modes of treatment, and hopefully a cure. The group also would like to reach out to physicians newly involved with the disease. Information about the disease and tips on explaining it to the patient will be provide through several modes, including the web site, links to the American Autonomic Society , access to a referral base of experienced physicians, and educational meetings. By sharing information, resources, and support the SDS/MSA Support Group will create a "Circle of Hope" for those affected by SDS/MSA.
Where to Go Chat with Others
Learn More About It
Shy-Drager Syndrome Mini Fact Sheet
Shy-Drager Syndrome
Medical College of Wisconsin Physicians and Clinics
Multiple System Atrophy
From the We Move Web Site
Links
Shy-Drager Syndrom/Multiple System Atrophy Web Site
Charmayne's Multiple System Atrophy / Shy-Drager Pages