Resources- Specific Diagnosis Card Catalog- Shwachman Syndrome
Who to Contact
Shwachman-Diamond Syndrome Support International
c/o Joan Mowery
5195 Hampsted Village Ctr Way, PMB #162
New Albany, Ohio, 43054
877-SDS-INTL (toll-free)
877-481-6106 (fax)
E-mail: 4sskids@shwachman-diamond.org
Web: www.shwachman-diamond.org
Shwachman-Diamond Syndrome Support International is the premier nonprofit support organization helping the victims of this disease. Our primary goals are to link families for emotional support locally, nationally and internationally, and supply them with the most current medical information available. This information is provided through the knowledge and cooperation of our medical advisory board. We are in the forefront of the fight to find a cure for this disease.
This organization was founded in 1994 by concerned parents. Our membership is comprised of children and adults with Shwachman-Diamond Syndrome, their parents, families, friends, and concerned medical professionals. We are now offering support to families in seventeen countries from around the world and our membership is growing daily.
Where to Go Chat with Others
Shwachman-Diamond Family & Friends List
A support list for all affected in some way by Shwachman-Diamond Syndrome (SDS). We wish to provide those affected by SDS a place to find encouragement and support.
Shwachman-Diamond Syndrome Support List
To provide others who are affected by Shwachman-Diamond Syndrome a safe place to seek and give support in dealing with this disease. Patients, parents, friends, relatives and physicians are welcome to participate.
Learn More About It
Shwachman Syndrome
From OMIM
Links
Shwachman-Diamond Syndrome Canada
Shwachman-Diamond Syndrome Support International
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