Resources- Specific Diagnosis Card Catalog- Stickler Syndrome

Who to Contact

Stickler Involved People (SIP)
15 Angelina
Augusta, Kansas, USA 67010
316-775-2993 (fax)
E-mail: sip@sticklers.org
Web: www.stickler.org

The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting a pen pal group for all ages.

Stickler Involved People publishes a quarterly newsletter, Stickler Involved People Newsletter, at no cost to members, and a brochure, "Strickler Syndrome--What You Need to Know First." They have a bibliography of articles regarding the syndrome that is available. You can contact them for a list of articles and to obtain a particular article.

Additionally, SIP collects information on physicians and researchers who treat/study the condition and makes this information available upon specific request. They will provide referrals dependent upon need.

Where to Go Chat with Others

Stickler Syndrome
Stickler Syndrome stories and support

SIP Discussion List
The SIP mailing list is maintained by Stickler Involved People. It's intended to provide a way for people to communicate and distribute information and experiences about Stickler Syndrome and those it affects.

Learn More About It

Definition of Stickler Syndrome

About Stickler Syndrome

Marshall Syndrome
From the Online Mendelian Inheritance in Man

Stickler Syndrome: Type I
From the Online Mendelian Inheritance in Man

Stickler Syndrome: Type II
From the Online Mendelian Inheritance in Man

Links

Dave Hawley's Stickler Syndrome Page

Stickler Involved People (SIP)

Stickler Syndrome Support Group
United Kingdom

Stickler Syndrome Outreach
Oregon