Resources- Specific Diagnosis Card Catalog- Syringomyelia
Who to Contact
American Syringomyelia Alliance Project
P.O. Box 1586
Longview, Texas 75606-1586
(903) 236-7079
E-mail: info@asap4sm.com
Web: www.asap4sm.com
The American Syringomyelia Alliance Project, Inc. (ASAP) is a non-profit, 501(c)(3), membersupported organization, chartered in May 1988. Don and Barbara White started ASAP as a grassroots organization in their spare bedroom due to the frustration they encountered when Barbara was first diagnosed. Since then ASAP has become a nationwide support group serving thousands and sending tens of thousands of information packages.
Where to Go Chat with Others
Syringomyelia Friends
Syringomyelia is a diagnosis which we are given that leads to confusion, frustration, anger, sadness and pain. Through this group, we will work together to help one another sort through the emotions and information associated with this disease.
ACM/syringomyelia support group and mailing list
A group for and about those who suffer from Chiari Malformations with or without syringomyelia/syrinx.
Our Chiari Kids
This is the place to share information about Chiari and Syringomyelia. It's not only for questions and answers about ACM/SM and related disorders but also a place to share what our children's lives with these conditions have been like, where we are now and where we hope to be in the future.
Learn More About It
Syringomyelia fact sheet
from NIH
Syringomyelia - from The Spinal Cord Injury Newsletter
Syringomyelia Information
from OMIM
Links
American Syringomyelia Alliance Project, Inc.
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