Resources- Specific Diagnosis Card Catalog- Tay-Sachs Disease

Who to Contact

National Tay-Sachs and Allied Diseases Association
2001 Beacon Street, Suite 204
Brighton, MA 02135
Tel: 617-277-4463
800-90-NTSAD (906-8723)
Fax: 617-277-0134
E-mail: info@ntsad.org
Web: www.ntsad.org

The National Tay-Sachs & Allied Diseases Association (NTSAD) is dedicated to the treatment and prevention of Tay-Sachs, Canavan, and related diseases, and to provide information and support services to individuals and families affected by these diseases, as well as the public at large. Strategies for achieving these goals include public and professional education, research, genetic screening, family services and advocacy.

Late-Onset Tay-Sachs Foundation
P.O. Box 5
Flourtown, PA 19031-0005
Phone: 1-800-672-2022
In PA: 1-215-836-9426
Fax: 1-215-836-5438
E-mail: lotsf@verizon.net
Web: http://www.lotsf.org/

The Late Onset Tay-Sachs Foundation is dedicated to the needs of people with this condition. LOTSF has a threefold mission: to provide support to affected people and their families; to educate the medical and lay communities about the condition; and to support relevant research projects.

Where to Go Chat with Others

The Genetic Disease Mailing List
This list is a means of networking and communication for individuals concerned with the various genetically-transmitted diseases existing within Jewish populations. Everyone is invited to participate, however, because diseases common among Jewish people may, and almost always do, affect individuals from all of the world's cultural and ethnic groups.

Learn More About It

Tay-Sachs Disease Information Page
From the National Institute of Neurological Disorders and Stroke at the National Institutes of Health

What is Late Onset Tay-Sachs?

Tay-Sachs Disease Information
from OMIM

Tay-Sachs Disease Information
from Ped Base

About Tay-Sachs disease

Links

National Tay-Sachs & Allied Diseases Association Web Site

Late Onset Tay-Sachs Disease Web Site

National Tay-Sachs & Allied Diseases Associaton of Delaware Valley