Resources- Specific Diagnosis Card Catalog- Thalassemia

Synonyms: Cooley's Anemia, Mediterranean Anemia

Who to Contact

Cooley's Anemia Foundation
129-09 26th Avenue
Flushing, NY 11354
718-321-2873 (phone)
800-522-7222 (toll-free)
E-mail: info@cooleysanemia.org
Web: www.cooleysanemia.org

The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major.

Our mission is advancing the treatment and cure for this fatal blood disease, enhancing the quality of life of patients and educating the medical profession, trait carriers and the public about Cooley's anemia/thalassemia major.

Where to Go Chat with Others

Thalassemia Patients and Friends
This club was created for the education and support for Thalassemia. All are welcome. Make new friends and learn more about how we each deal with Thalassemia. Whether you are a patient or a family member dealing with this diorder.

Adopt Thalassemia
A support group and information site for families who have adopted children with Thalassemia

Cooley's Anemia Foundation Forums

Learn More About It

Introduction to Thalassemia

What Is Thalassemia?

Treating Thalassemia

Learning About Thalassemia
From the National Human Genome Research Institute

Links

Cooley's Anemia Foundation

Northern California Comprehensive Thalassemia Center at Children's Hospital Oakland

Berloni Foundation Against Thalassemia
Italy