Resources- Specific Diagnosis Card Catalog- Tourette Syndrome
Who to Contact
Tourette Syndrome Association (TSA)
42-40 Bell Blvd
Bayside, New York, USA 11361
Phone: 718-224-2999
Fax: 718-224-9596
E-mail: ts@tsa-usa.org
Web: www.tsa-usa.org
The Tourette Syndrome Association is a voluntary health organization dedicated to identifying the cause; finding a cure; and controlling the effects of Tourette Syndrome. TSA provides accurate and up-to-date information about the disorder to schools, medical professionals and to the general public and funds scientific investigations that well improve treatment and understanding of the disorder.
The Association has local chapters and will provide assistance to anyone who wishes to start a support group in their area. A listing of local support groups is included on a state physician referral list. Some local chapters provide parent-to-parent matching. They publish a quarterly newsletter, TSA Newsletter, that is included in membership dues. TSA offers booklets including, "Tourette Syndrome-Questions & Answers," "Facts You Should Know About the Genetics of TS," and "Gift of Hope." There is a catalog of TSA videos and films and brochures for educators, call or write for further information.
TSA provides a new parent packet which includes: a physicians referral list, a newsletter, and a questionnaire. They collect information on physicians and researcher who treat/study the condition and disseminate the information to their members. Additionally, TSA provides referrals to professional and family services. The Tourette Syndrome Association hosts an annual conference, call for further information.
Where to Go Chat with Others
Tourette Syndrome TS Email
List several Tourette Syndrome Discussion Groups
TS Family Support
This is a friendly, supportive mailing list for parents or family members of children who have Tourette's Syndrome
Learn More About It
Tourette Syndrome Information from NINDS
Treatment of Tics and Tourette's
Guide to the Diagnosis and Treatment of Tourette Syndrome
Links
Síndrome de Tourette - Spanish
Tourette Syndrome Association of Australia
Tourette Syndrome Support in the UK
Tourette Syndrome Foundation Canada