Resources- Specific Diagnosis Card Catalog- Treacher Collins Syndrome
Synonyms: Treacher Collins-Francheschetti Syndrome; Mandibulofacial Dysostosis
See Also: Deafness, Craniofacial Disorders
Who to Contact
Treacher Collins Foundation
P.O. Box 683
Norwich, VT 05055
802-649-3050
800-TCF-2055
Web: www.treachercollinsfnd.org
The Treacher Collins Foundation aims to support, inform, and network families and individuals with Treacher Collins syndrome and related conditions; serve as a resource for current information about Treacher Collins syndrome and related conditions; provide medical, educational, and other service providers with information about Treacher Collins syndrome and related conditions and the needs of families and individuals; improve the level of understanding and acceptance by the general public of people who have facial difference; promote research activity aimed at improving the quality of life of persons with Treacher Collins Syndrome and related conditions and plan, develop, and provide services aimed at the realization of these purposes.
Where to Go Chat with Others
Treacher
To interchange feelings, concerns, issues, treatment options, etc. with families, friends of those who have Treacher Collins Syndrome (TCS).
Learn More About It
An Overview of Treacher Collins Syndrome
Treacher Collins: A Rare Genetic Disorder Affecting Craniofacial Development
Links
Reflections on Treacher Collins Syndrome
Treacher Collins Syndrome - United Kingdom