Resources- Specific Diagnosis Card Catalog- Turner Syndrome

Who to Contact

Turner Syndrome Society of the United States
14450 TC Jester, Suite 260
Houston TX 77014
800-365-9944 (toll-free)
832-249-9988 (phone)
832-249-9987 (fax)
E-mail: tssus@turner-syndrome-us.org
Web: www.turner-syndrome-us.org

The Turner Syndrome Society of the United States is a young organization whose membership has quickly grown into the thousands. More than 38 chapters and 18 support groups are active across the country, with many other in the process of organizing.

The Society is a non-profit organization whose mission is to:

Increase public awareness and understanding of Turner Syndrome;

Increase understanding of those affected by Turner Syndrome about the condition and its associated problems;

Provide a forum where those affected by Turner Syndrome can become acquainted with others in similar situations and thereby gain some understanding of how to cope with the problems created by the condition; and

Work together with medical and health-care professionals to better understand the condition through research and communication of ideas.

The Society works with more than 38 affiliated chapters across the country. Local organizations offer support groups, social activities, education forums and public awareness. A listing of local chapters is available from the Society.

Where to Go Chat with Others

Usenet News Group: alt.support.turner-syndrom

Turner Syndrome Forum
Created to give everyone a place to discuss thier experiences with Turner Syndrome. Come in and join our discussions, meet some new people, and maybe learn something new about Turner Syndrome. Please keep in mind that we have a varied age group and some topics may not be suitable for younger audiences.

Turners Syndrome-L
Mailing list for individuals with Turner's Syndrome and their families

MostMales
This egroup is for families who have contact with male children who have been diagnosed with mosaic Turner Syndrome.

Learn More About It

What is Turner's Syndrome

Turner's Syndrome FAQ

Turner Syndrome in a Life Span Perspective: Research and Clinical Aspects

Links

Turner's Syndrome Society, Texas, "San Antonio / Austin" Chapter

The Turner Syndrome Society of the United States

Anita's Homepage