Resources- Specific Diagnosis Card Catalog- Velo-Cardio-Facial Syndrome
See Also: DiGeorge Syndrome, Craniofacial Disorders
Who to Contact
Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
PO Box 874
Milltown, New Jersey 08850
(732) 238-8803
1-866-VCFSEF5
E-Mail: info@vcfsef.org
Web: http://www.vcfsef.org/
The Velo-Cardio-Facial Syndrome Educational Foundation is an organization comprised of both professional and lay people whose purpose is to educate the public, the scientific community, families of individuals with Velo-Cardio-Facial syndrome, and individuals with Velo-Cardio-Facial syndrome (VCF) about this common genetic disorder. The Foundation acts as an advocate for both patients with VCF and the professional community treating this disorder, provides a forum for the advancement of knowledge relevant to the diagnosis and treatment of individuals with VCF, and provides a forum for discussion of the problems, treatments, or achievements associated with VCF and its management.
The VCFS Educational Foundation consists of over 1300 lay and professional members worldwide. Annual dues are used to produce and distribute literature and educational information to the membership, including: a general information packet regarding VCFS, a periodic newsletter, the official Foundation web site, and such other information as determined by the board of directors and member council, as well as directly addressing queries regarding VCFS.
Where to go to Chat with Others?
VCFS Family Support
A Place to Chat about VCFS/DiGeorge Syndrome
VCFS The Velo-Cardio-Facial Syndrome and DiGeorge Syndrome List
c22c
For families and professionals, interest in Chromosome 22
Learn More About It
An Article from the OMIM Data Base
Learning difficulties and the VCFS Child
Velocardiofacial Syndrome
From the National Institutes of Health
Frequently Asked Questions about VCFS
Links
Velo-Cardio-Facial Syndrome and DiGeorge Syndrome
Velo-Cardio-Facial Syndrome Educational Foundation
The 22q11 Group - United Kingdom
Support Group for Chromosome 22 Related Disorders
Site designed and maintained by proFilesInteractive