Resources- Specific Diagnosis Card Catalog- Williams Syndrome
Who to Contact
Williams Syndrome Association (WSA)
PO Box 297
Clawson, Michigan, USA 48017-0297
Phone: 248-244-2229
Toll-free: 1-800-806-1871
Fax: 248-244-2230
E-mail: info@williams-syndrome.org
Web: www.williams-syndrome.org
The mission of the WSA is to help all individuals with Williams Syndrome to reach their full potential and take their rightful place in our society, disseminate timely and accurate information regarding the syndrome to families, professionals, and the public, support each other and become an active and visible force to increase professional awareness and interest in the syndrome, and actively support research into educational, behavioral, social and medical aspects of the syndrome.
WSA has local chapters and a directory of these groups is available. They encourage networking among families and list of area families are provided. They publish the, Heart To Heart, newsletter three times a year, this is included in membership fees and have a brochure that offers facts about Williams Syndrome. WSA has a parent packet that contains a copy of the newsletter, fact sheets, articles, and growth charts.
The association has a bibliography of books and articles and audio cassettes that are available to members. Call or write for resources order form. WSA collects information on physicians and researchers who treat/study the condition and disseminates this information to its members. They provide information and referrals to other resources and providers.
Where to go to Chat with Others?
Williams syndrome listserve
Sharing information with other other parents, and with individuals with Williams syndrome, is an extremely valuable experience.
Learn More About It
Williams Syndrome Information Page
From the National Institute of Neurological Disorders and Stroke
Different Minds
An article about Williams Syndrome
Williams Syndrome: Medical and Genetic Information
Williams Syndrome and Savant Syndrome
Links
Moylan Family Homepage and Williams Syndrome
Williams Syndrome Foundation - United Kingdom
Williams Syndrome Association of Ireland
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